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Patricia Shearer's avatar

Don, thanks for posting this. As many of you know, I’m a pediatric palliative care doctor and pediatric oncologist. After my fellowship in palliative care at Emory I set up an adult program in an affiliated hospital. This was possible because our Board is through the American Board of Internal Medicine and covers all ages.

I noticed right away that many, if not most, patients have an internal clock. Although adult children and close friends may push for the loved one to “fight” or go to Rehab or do one more round of chemo, those pleas don’t change the clock. I quickly learned how to guide family members to accept this to fulfill the patient’s deep wishes to let his or her life cycle to complete itself.

We also know that grief begins at diagnosis. As Therese Rando, grief expert in Rhode Island cogently wrote in 1988, anticipatory grief is a misnomer. Medical, psychical, spiritual, and social impacts start rearing their heads immediately. The proportion of each aspect varies, yet all are real.

Your piece is particularly rich in terms of describing interventions. For example, yoga addresses the phenomenon that “the body holds the stress.” I can’t help but believe that many will be comforted by what you suggest.

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Janice Walton's avatar

My grieving process began when my husband of 60 years began struggling with dementia. I lost him in bits and pieces for 5 years until he died of COVID. During that time, I was too busy keeping us going and then starting over as a single older adult to really grieve. Now, a year and a half later, the grief continues . . it lessens, but never really goes away. My life is not the same.

I appreciate Patricia's point regarding the internal clock and fulfilling the patient's deep wishes to let his life cycle complete itself. Thank you.

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